1719 N Street, N.W., Washington, D.C. 20036, Mineral body armor helps some leaf-cutting ants win fights with bigger kin, A face mask may turn up a male wrinkle-faced bat’s sex appeal, Lonely brains crave people like hungry brains crave food, Coronavirus shutdowns don’t need to be all or nothing, The FDA has approved the first drug to treat the rapid-aging disease progeria, Immunity to COVID-19 may persist six months or more, Plastics are showing up in the world’s most remote places, including Mount Everest, 50 years ago, scientists named Earth’s magnetic field as a suspect in extinctions, Technology and natural hazards clash to create ‘natech’ disasters, Arecibo Observatory, an ‘icon of Puerto Rican science,’ will be demolished, Farming on Mars will be a lot harder than ‘The Martian’ made it seem, Planets with many neighbors may be the best places to look for life, Newton’s groundbreaking Principia may have been more popular than previously thought, Supercooled water has been caught morphing between two forms, Giant lasers help re-create supernovas’ explosive, mysterious physics, different genetic testing companies can yield different results, for more on those rules, check out this video, DNA testing can bring families together, but gives mixed answers on ethnicity, What consumer DNA data can and can’t tell you about your risk for certain diseases, Why using genetic genealogy to solve crimes could pose problems, Oxford and AstraZeneca say their COVID-19 vaccine works too, The biblical warrior Goliath may not have been so giant after all, Here’s why COVID-19 vaccines like Pfizer’s need to be kept so cold, New Pfizer results show its COVID-19 vaccine is nearly 95% effective, Specialized for looking into the deep past, Provides no ancestry information within the last 500 years, Offers detailed ethnicity estimates for people of British or Irish descent, Incorporates DNA results into family trees, Allows DNA results to be combined with traditional genealogical records, Provides no information about ancient ancestry. Genetic information can have important implications not only for the one who is tested, but also for her relatives. A version of this article appears in the June 23, 2018 issue of Science News. Talk to your doctor about whether genetic testing is right for you. Kaiser Permanente here in California has seven, eight million members with a good electronic health record. However, DTC tests cannot definitely determine whether or not you will get a disease and should not be used alone for decisions about your treatment or medical care. I just learned two days ago about another potential biomarker involving growing cells from your skin cells and turning them into neurons. Molly Wood Oct 16, 2018 A visitor views a digital representation of the human genome in 2001 at the American Museum … But, as far as I can recall, I don’t think you’ve got any specific right to the research-specific findings. If you’ve got an identical twin, that’s all of your information. Should they even bring it up? Hank Greely: There’s no legal obligation, there’s no ethics governing entity out there. I did get a breakdown of how different groups — Stone Age hunter-gatherers, early farmers and “Metal Age Invaders” from the Eurasian steppes — contributed to my DNA. Linking to a non-federal website does not constitute an endorsement by CDC or any of its employees of the sponsors or the information and products presented on the website. But I found this tool difficult to use. You can’t protect against your family members doing this and from your family members’ information. I’m not interested in my APOE status. They requested their full genetic data record from Myriad Genetics, the Utah lab that performed the testing for them. The results may allow customers to manage their own health, but can also lead to revelations that are surprising or alarming. One strategy is, make sure no one else sees your information. I really don’t encourage parents to test their children unless there’s a good medical reason for it. I was given direct access to my test results; it was up to me to decide what additional clarification I … Passed in 2008, a federal law called the Genetic Information Nondiscrimination Act (GINA) made it illegal for health insurance providers in the United States to use genetic information in decisions about a person's health insurance eligibility or coverage. Given that, I think there is a point where you have to say, “We’re not going to pursue this but others might find it useful,” and make the data available. A good way to think about genetic testing is as if you’re asking the DNA a question. 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The DNA services have grown popular without most consumers realizing that their data could be used for purposes other than genealogy, such as forensics, said Benjamin Berkman, a bioethicist at the National Institutes of Health, who wrote about ethical issues of using genealogy data to solve crimes in the Annals of Internal Medicine. Hank Greely: One thing you can do is pay close attention to what your genetic provider says in their terms and agreements, what boxes you check and what boxes you don’t check because the only big player that’s doing a lot of medical stuff right now is 23andMe. Don’t give up hope. But protections can get murky when genomic data is used for human-subject medical research or for treatment, says Pamela Hepp, a health care attorney at Buchanan Ingersoll & Rooney specializing in data privacy. Ownership of Genetic Information What happens to your genetic information once you’ve obtained your results from a genetic test or after you have completed a research study?

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